Beyond the Numbers: The Impact of PK Deficiency

On this episode, we reconnect with Dr. Rachael Grace to discuss how to empower patients to share the impact of their PK deficiency on their life. We also learn from patients John and Morgan about their experiences with this disease.

SHOW DESCRIPTION

Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD.  Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community.  Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Facebook: bit.ly/KnowPKD.

TRANSPARENCY STATEMENT

Just Listen: Voices of PK Deficiency and KnowPKDeficiency.comare made possible by Agios Pharmaceuticals Inc. VisitAgios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time. 

Produced by BloodStream Media

Special thanks to our participants:

Dr. Rachael Grace

John Schork

Morgan Kate Vincent