Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio
The Disorder Channel and DISORDER: Rare Disease Film Festival co-founder and rare disease parent Bo Bigelow joins BloodStream to discuss a recent article on the parents who are navigating the “wilderness” of rare genetic disease and to preview The Disorder Channel’s work at the upcoming Global Genes Patient (un)Summit!
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Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio
Show Notes:
Presenting Sponsor: Takeda
The Wilderness of Rare Genetic Disease and the Parents Navigating It
The Disorder Channel & Rare Disease Film Festival
Global Genes LIVE! A RARE Patient Advocacy (un)Summit!
Bo’s Stronger Everyday Podcast
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