Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!
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Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!
Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.
Show Notes:
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Recent novel therapy news:
CSL Behring gene therapy makes comeback after hold for FDA priority review
BioMarin delays planned FDA filing for hemophilia gene therapy
FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment
Presenting Sponsor: Takeda.
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The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com
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