Lived Experience Experts: Taking Their Rightful Place at the Research Table

June 27, 2024 Keith Korneluk

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Lived Experience Experts: Taking Their Rightful Place at the Research Table Global Hemophilia Report

In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in hemophilia research. Featuring a distinguished panel, the discussion covers the evolution, importance, and future of LEE involvement in research. The episode emphasizes the pivotal contributions of LEEs in making research more relevant and impactful, driven by personal and community experiences.

Contributors:

Len Valentino MD

Samantha Carlson MSW, LMSW

Randy Curtis

Ray Stanhope

Kyle Davis MD

Senior Advisor: Donna DiMichele, MD

Special Episode Advisor: Maria Santaella PhD(c), MSN, RN-BC, CPHON

Hosted & Written by: Patrick James Lynch

Featured Advertiser:

Sanofi

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