Presented by Agios

Just Listen: Voices of PK Deficiency

Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for

patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.

Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions.

Meet Your Host

Rachael Grace, MD, MMSc, is a pediatric hematologist and clinical researcher at the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. She is the medical director of both the Hematology Ambulatory Program and the Hematology Clinical Research Program. Dr. Grace enjoys clinical care of pediatric patients and her research interests are focused on improving outcomes in the care and treatment of individuals with immune cytopenias.

Dr. Grace is the lead investigator for the Pyruvate Kinase Deficiency Natural History Study, a global registry for patients with PK deficiency. She is a site investigator for the DRIVE-PK and ACTIVATE mitapivat (AG-348) clinical trials and the PEAK registry. She is also involved in multiple clinical research studies in immune cytopenias and is the director of the coordinating center for the ITP Consortium of North America (ICON), a research network of pediatric idiopathic thrombocytopenic purpura investigators from over 50 institutions in the U.S. and Canada.

Rachael Grace, MD