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All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Two Disabled Dudes
Shows All Shows Ask the Expert BloodStream Blood of the Paladin Cheat Codes FLOW Global Hemophilia Report Gut Matters: Discoveries & Innovations It's in the Genes Journeys Just Listen: Voices of PK Deficiency Mas Que Raras Once Upon A Gene Pain Podcast PNH: Facts, Fiction & FYI Thal Pals: The Alpha Beta Revolution The Final Summit Two Disabled Dudes AboutContactNewsletter
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Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Episode 083 - Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Ryan GielenJuly 30, 2021
Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
Episode 084 - Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O’Loughlin
Ryan GielenJuly 30, 2021
Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič
Episode 093 - Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič
Ryan GielenJuly 30, 2021
Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments
Episode 092 - Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments
Ryan GielenJuly 30, 2021
Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Episode 091 - A Rare Collection - Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Ryan GielenJuly 30, 2021
Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D
Ryan GielenJuly 30, 2021
Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Episode 089 - Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Ryan GielenJuly 30, 2021
Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
Episode 088 - Living with Persistent Uncertainty Without a Rare Disease Diagnosis - Meghan Halley
Ryan GielenJuly 30, 2021
Episode 087 - A Rare Collection - Superheroes
Episode 087 - A Rare Collection - Superheroes
Guest UserJune 21, 2021
Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Episode 086 - Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Guest UserJune 21, 2021
Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Episode 085 - Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Guest UserJune 21, 2021
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Ryan GielenJune 15, 2021

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